Many caregivers are proud of the fact that they’re helping their loved one and doing what they can to keep that person home with the family. But no one claims that caring for a loved one with Alzheimer’s disease is easy. Taking on this heroic task is without a doubt exhausting: mentally, physically, emotionally, and financially. Most caregivers report feeling high levels of emotional stress, and many are just simply worn out physically.
For this reason, all caregivers should consider the option of respite care. Respite care is offered at assisted living and similar facilities. A loved one can check into the facility temporarily and there get the expert care they need, allowing caregivers some time to recharge. This can be for as long as a week or two, or as short as an afternoon, giving you the chance to get some important errands done.
Rather than frantically doing a search for a respite care facility when you’re at the end of your rope and in a panic, it’s best to start your research before you think you need it, while caregiving still seems manageable. Talk to senior homes and adult daycare programs in your area to learn about the different options available.
Respite care might be a good change not just for you, but for your loved one as well. They may enjoy the chance to interact with the other seniors that they meet in their temporary home. Many facilities will hold entertaining events, or run fun activities that are specially designed for their particular ability level.
Some Alzheimer’s patients may have some trouble with being in a new environment. However, they do have the capability to get used to being in a new place if you make taking a break a regular routine.
How do you know when making use of respite care might be a good idea? Pay attention to your emotions and your body to recognize burnout. These include having trouble sleeping, exhaustion, anxiety, depression, social withdrawal, and anger. Your body will often warn you when you’re getting in over your head, so be mindful of any health problems that crop up.
Respite care is not a cop-out, and you are not abandoning your loved one. Rather, you are taking a break to prevent your own burnout. By taking advantage of the respite care option, you are strengthening your ability to provide the best possible care for your loved one. Consider that if you ignore your stress, you may create bigger problems down the line that will result in you giving up caregiving permanently. You can always run much further if you start and stop, rather than push through past the point of exhaustion.
Contact us for more information about the respite care options at Raya’s Paradise.
Memory Care Resources
Explore insightful articles, expert advice, and practical tips to support your loved one’s transition to memory care. From navigating challenging conversations to understanding the benefits of personalized care, our Memory Care Resources category provides the guidance and knowledge families need to make informed decisions and ensure their loved ones thrive in a supportive environment.
Families facing Alzheimer’s disease are often told that a particular food, supplement or diet can protect the brain, restore memory or even reverse cognitive decline. These claims are appealing because food feels familiar and controllable at a time when so much else feels uncertain.
Nutrition does matter. Food affects cardiovascular health, blood sugar, energy, weight, strength and the ability to recover from illness. These factors can influence how well an older adult functions from day to day. However, no individual food and no dietary pattern has been proven to cure or reverse Alzheimer’s disease.
Dementias are degenerative disorders that develop primarily in the nervous system and selectively damage particular areas of the brain. Some dementias, like Alzheimer’s disease affect all areas of the brain simultaneously, while others, such as frontotemporal dementia, affect the parts of the brain involved in controlling one’s communications and emotions. Still others are caused by vascular disease, brain trauma, or chronic alcohol abuse (Korsakoff’s syndrome)
By 2030, 20% of U.S. population will be older than 65 years of age – about 50 million people. Dementia affects 1% to 6% of those older than 65, and between 10% and 20% of those older than 80 years of age. In the next 30 years, estimated 10-20 million seniors in U.S. will have mild to severe forms of dementia.
Seniors with history of moderate traumatic brain injury (TBI) have a 2-3 times greater risk of developing Alzheimer’s disease – those with a severe TBI have a 4-5 times greater risk. Even healthy seniors are at risk for falls and head trauma, so any fall to the head, however minor, should be seen by a medical professional and documented.
Alzheimer’s disease accounts for 65% of all dementias. There is no direct diagnosis of Alzheimer’s – and while PET scans and other imaging techniques are being studied, none have yet been able to show the presence of Alzheimer’s disease.
Alzheimer’s onset often surprises families because vision, movement, and sensation remain untouched while a senior’s memories begin to slowly decrease. Recent memories are affected first, leading to “senior moments” that appear innocent because all other memories, including those from decades ago, remain intact. Eventually those remote memories begin to fade, and lastly the senior’s “crystallized” memories, such as family member’s names and faces, are compromised.
By David L. Raffle, PhD
Clinical and Forensic Neuropsychologist
www.RaffleBrainInstitute.com
Losing a spouse is one of the most emotionally challenging experiences a person can face. When a loved one with dementia goes through this loss, the grieving process can be even more complex. Dementia affects memory, cognition, and emotional regulation, making it difficult for individuals to process and cope with bereavement in traditional ways.
A dementia diagnosis often raises concerns about whether the condition is hereditary. Many people worry about passing it on to their children, while others watching their parents struggle with the disease wonder, Will this happen to me one day? The good news is that, in most cases, dementia is not directly inherited. However, some forms of dementia have genetic components that may increase a person’s risk. Scientists are still working to fully understand these complex connections, but research has shown that while family history can be a factor, lifestyle and environmental influences often play an even greater role.
Dementia and depression share many common symptoms: withdrawal from loved ones, decreased interest in activities that were once enjoyable, memory difficulties, and an increase in sleep. Researchers have begun to explore the connection between the two and to ask whether dementia causes depression, or if perhaps depression causes dementia?
One study has found that those who have had a incident of depression are three times as likely to develop dementia. Other studies discovered that when in their life a person experiences depression can influence what kind of dementia they get. Those whose depression begins in mid-life are more likely to get vascular dementia. However, if the episode of depression occurs late in life, Alzheimer’s disease is more likely.
Researchers aren’t sure what causes these links, but they do have some theories. One is that when an individual is experiencing depression, their body produces a greater amount of the stress hormone corisol. This hormone has been shown to do damage to the areas of the brain that manage learning and short-term memory. Depression can also cause inflammation which can harm blood vessels. Finally, there’s also the possibility that the hippocampus, which helps the brain process information and create memories, is harmed when the brain experiences stress long-term. Some even speculate that since depression causes people to be less active both physically and socially, that less challenging lifestyle may accelerate the decay of the mind.
Researchers are very careful to state though that they still have much to learn about this area of study. The connection also seems to work in reverse, with dementia patients being more likely to become depressed after the disease has taken hold. Also, the similarities of the two conditions and the fact that they share many differences make the connection between them difficult to tease out.
One implication that is relatively clear, however: depression needs to be taken seriously and treated as soon as it’s caught. Left alone, it can cause too much damage to an individual’s brain, even if that person eventually moves past depression without intervention. Seniors and their caregivers should know that depression is not a normal sign of aging: it is a mental health issue that needs to be addressed no matter the age of the patient.
This is certainly an area of research to watch over the coming years, and holds promise for helping us understand how conditions of the mind and spirit can ultimately affect the body.There are many seniors who make the transition to assisted living or memory care comfortably. But unfortunately, due to the nature of the disease, sometimes loved ones are faced with an uncomfortable request: “I want to go home.” Such a plea is heartbreaking, and when you hear it every time you visit it can leave you quite distressed.
Understanding What Home May Mean
The first thing to know is that when your loved one says “home,” they probably don’t mean their previous residence. Remember that due to Alzheimer’s and dementia, they’re living in their earlier years. Home is most likely their childhood home, and that place and the people they lived with may be long gone. So before you beat yourself up with guilt, know that they are requesting something impossible that you couldn’t give them no matter how hard you tried.Responding with Gentleness
The best way to deal with this request is with gentleness and a little bit of subterfuge. This is one of those moments where enabling your loved one’s denial may be the better course. Avoid correcting or arguing with your loved one, as this will only cause distress without really aiding them in recognizing the truth.Redirecting the Conversation
First, use positive body language such as nodding your head. Then try to change the subject. Look for something interesting going on in the immediate environment. Maybe there’s a bird outside the window, or a colorful painting nearby. Point this out to them and shift the conversation. It may also be helpful if you can move them physically: guide them to the object of interest or turn them to face a different direction. You are trying to get them out of an unproductive rut.Using Memories to Bring Comfort
From there, seguey into your loved one’s memories. Get them to talk about what “home” was. This will help them pay this cherished place a visit, if only in their minds. A photo album might be helpful here if you have one. Your discussion may give you some clues about how you can bring home to them in their new living space. Perhaps there are beloved objects or furniture that will help their new surroundings feel more familiar. Families supporting the early adjustment period can also use an Orange County first month in assisted living checklist to track routines, comfort items, care updates, visits, and staff communication.Accepting What You Can and Cannot Change
Your loved one will likely not completely stop talking about home, and you’ll likely continue to feel the pangs of heartbreak. However, some knowledge about where the request is coming from can help you accept it. This is a case where you may not be able to change external circumstances, but you can change how you react to them.Making the decision to move into memory care can be difficult for seniors. Many want to maintain their independence as long as possible, making it a sensitive and challenging conversation for their families. For the best results, focus on helping your parent feel that this is their decision.
A thoughtful and respectful approach can make all the difference. Follow this five-step plan to help your parent transition to memory care.
One hardship for those with Alzheimer’s is a lack of understanding about this disease from those in the general public. Though it may hurt sometimes, to some extent this is understandable. We can’t all be expected to be knowledgeable about every disease, even more common ones. Typically, we forgive those who are important to us if they need a little education. But many Alzheimer’s sufferers and their caregivers are surprised to discover that many in the medical field, who do not work with memory care patients frequently, also do not have a good understanding of what Alzheimer’s is.
Imagine someone in the early stages of Alzheimer’s falls and breaks their hip, requiring a stay in the hospital. When the doctor interviews her and her son to learn about other medical conditions that may affect treatment, they mention that she has early Alzheimer’s. The doctor seems to ignore this information, which he fails to see as relating to the broken hip, especially since after a casual interaction he notices no cognitive impairment.
However, our patient quickly runs into problems. The doctor goes over instructions for her pain medication at a time when her son isn’t at the hospital, expecting that she will manage this on her own. The next time her son comes in, he finds her in extreme pain because she hasn’t taken the medicine on schedule. He points out this problem to the doctor. The hospital staff then goes to the other extreme, hovering over the patient excessively, speaking to her in slow loud voices, and even spoon-feeding her! Those with early Alzheimer’s know that this clearly is not the appropriate response either.
Unfortunately, the fact is that medical professionals just don’t receive adequate training on how to handle those with more mild cognitive impairments. They are able to address severe impairments, but the shades of gray in between just aren’t discussed. However, that’s cold comfort to early Alzheimer’s patients and their caregivers, who feel ignored and misunderstood by the system.
There’s no real answer to this problem for individual patients and families, since the issue is entrenched in our larger health care system. Hopefully in the future, all doctors, nurses, social workers, aides, and others will receive more refined training on how to deal with those with early Alzheimer’s and similar cognitive conditions. In the meantime, caregivers and patients should not assume that doctors and others will understand what they mean when they disclose early Alzheimer’s. Be specific about the kinds of communication you expect about the person’s treatment and how Alheimer’s will affect it.
Many caregivers face the important question of whether to allow their loved one with Alzheimer’s disease to be given antipsychotic medications. The benefit of such drugs (like Abilify, Haldol, Zyprexa, Risperdal, and Seroquel) are that they reduce anxiousness, aggressive behavior, and agitation in those who have different forms of dementia. Almost all patients will experience these symptoms at some point, especially in the later stages of the disease. On the other hand, these medications come with some frightening side effects: incontinence, dizziness, confusion, and a hampered ability to speak or move, to name a few.
The medicine can help to make a caregiver’s job easier and reduce their stress. This is of course not a trivial concern: if their loved one is less agitated, a caregiver in turn may be able to provide better care.
However, adding one more pill to any senior’s drug regimine may cause unpredictable problems. The FDA warned in 2005 that the use of antipsychotic medications by those with Alzheimer’s and other forms of dementia may result in as much as double the chance of sudden death. Patients who are taking these drugs must be watched carefully.
If your loved one is already taking these drugs, though, you may not want to take them off. Researchers recommend that seniors who respond to Risperdal keep on taking the drug.
But as far as starting these medications go, the general policy is that they should only be used as a last resort. It’s estimated that in as many as two-thirds of cases, the use of these medicines is inappropriate. Use behavioral strategies to cope with anxiety and acting out instead. You may want to try giving simple acknowledgement to your loved one’s experiences, even if you know that they differ from what the rest of us would consider reality. Avoid correcting them or arguing with them. Or simply try to distract your loved one with an enjoyable activity.
Also consider that the aggression and anxiety that these medicines are supposed to treat is a sign that your loved one needs something that they’re not getting. Instead of providing them with that thing, the medicine simply masks the symptoms. One tip is to respond to the emotion, not to the behavior. Look underneath their actions.
Of course, the most important advice to consider when making any decision regarding antipsychotic drugs is that of your loved one’s doctor. They can help you weigh the pros and cons for your particular situation.